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Wondered what challenges a legally blind person on a catching public transport could have? I present a blind challenge to achieve a goal!

I would like to share with you my fellow travellers, a story of me wanting to retain my feisty independent way of being, when a bit of patience would have served me far better.

Some may call me stubborn, or pig headed with my determination to soldier on ahead with trying to achieve my goals, I call it being focused on what needs to be done to attain it.

Sometimes however the trials and tribulations involved in ones’ endeavour to do so, can be quite over whelming.

Filled with enthusiasm and zest for wanting to keep the ball rolling toward my goal, I decided to take on this task by myself.

Picture of Colleen sitting on a garden seat with her dog Rhian in front of her.

My friend who usually helps me with things, was not available for another two days and Mum had medical appointments, along with the day planned to execute this job was going to be a bright sunny day. The weather forecast was important as being wintertime the days had been filled with rain. My friend telling me to wait until she was available to help, my enthusiastic response was “Don’t worry, it will be an adventure.”

A newfound confidence

I had just launched my second book “Ya gotta laugh” and was eager to get it on the local bookstores shelf. My destination was a shop in Fremantle, hours’ drive from where I live. I knew how to find it once I was in Fremantle, it was the commute there that was my challenge. I am not particularly familiar with catching trains or buses but had recently found a newfound confidence since participating in a cooking class in Perth with Vision Australia. I had no problem with catching the bus into the Elizabeth Quay station in the city and then the train along the Mandurah line. That however was the extent of my public transport experience.

I recalled a cooking participant telling me to get to Fremantle, all I had to do was catch the Fremantle line from the city and the train stops right there. ‘Simple,’ I thought. ‘I can do that ‘was what I reassuringly told myself. ‘How wrong could I go with that? Yep, I’ve got this ‘was my confident self-talk.

Confident like a strutting rooster

Rising early as I needed two hours travel time to get to Fremantle, along with a twenty-minute walk from my place to the bus that only runs every hour into the city, I didn’t want to miss the bus. With my book in hand, and ready to walk out of the door, I had a little brainwave. I contacted a friend that lived in Fremantle and asked if she was available to have a coffee catch up while I was down there? Her excited response was that she would meet me at the train station for a coffee, after I had dropped the book off at the shop. Yep, I was showing her how independent and confident I was in engaging on such big tasks. I felt like I was strutting like a rooster, chest puffed out, tail feathers held high and proud, owning my stuff.

Nearly missing the bus and having to frantically wave it down to stop again, At least I had Rhian by myside who makes for a good visual attraction. Rhian and I safely on the bus, we were on our way to starting our adventure. Rhian knew exactly where to take me to get me to the train station. Confidently strutting our stuff together through the bus port and down to the train station, we boarded the train in no time at all. Settling down for a forty-minute ride, all was well.

When the rooster feathers fall out

Hearing the names of the stops along the way, my brain began thinking how do I actually get to Fremantle from one of these stations ? Alarm bells began ringing as the names being announced were well past my destination point. When I heard Rockingham announced, the bells were really clanging in my head. I was a Half an hour’s drive further south from Fremantle! As I alighted from the train, I asked a passenger if they knew how to get to Fremantle from here. They had no idea bit would help me find someone to assist me. Now in the hands of a trusty transit guard, he told me that I had to catch the train all the way back into the city station, one stop past Elizabeth Quay.

Then go to platform seven and catch the Fremantle line. To get back to where I had to catch my bus on my return trip, I would have to go back to the city station, go to platform two to get back to Elizabeth quay. It was at this point that all of my fluffed-up rooster feathers not only drooped down but completely fell out. It was then that I remembered the cooking participant telling me that I had to catch the Fremantle line from the city. A small oversight that had slipped my mind but of such importance to my planned trip! Deflated, daunted with such a huge and unfamiliar challenge required, I was almost at tears. Thank God I had sunglasses on so no-one could see my welled-up eyes.

A ride of defeat

Back on the return train, I called my friend and told her that I would have to cancel as I was currently in Rockingham! Telling her of my adventure and dilemma of not being able to not only navigate the large Perth train station bit the time it would take to do so just wasn’t worth the effort. She offered to meet me at Murdoch station, which I was semi familiar with and pick me up there. At least that way we could still have our catch up.

Now in the car with her, she offered to drive me down to Fremantle. I told her that I was not going to worry about it as the day had already been long and stressful enough. We enjoyed a lovely lunch together, along with her buying the book off me.

Rhian and I back on the train to go home, I was beginning to settle down after the mornings events.

Feeling a little relieved that I would at least be able to catch an earlier bus home and miss the school run, Rhian and I waited at the bus stop.

Picture of the head of seeing eye dog Rhian looking arround.

Ten or so minutes later, a transit guard came along and asked me which bus I was waiting for? Telling him the 282, he informed me that I had a forty-minute wait. Now getting confused once more, I replied that I thought the 282 ran twenty past the hour.

He confirmed that it wasn’t coming until ten past. With that information, I really felt deflated.

Not only did I completely muck up my train ride endeavour but now my intended early ride home was also bumbled. This hole public transport thing is simply too hard for me! Was my defeated mind talk.

A long trek home

After Rhian and I sat patiently sitting by ourselves, like a shag on a rock, with not a soul around us, eventually another passenger ventured down to our bus stop. Thank God I thought, at least I know somebody else is wanting to catch the same bus. Finally, a bus pulls up and the passenger asks the driver if they are stopping at the Kalamunda depot? With hearing his confirming answer, I confidently boarded my ride home.

Weary from my mentally challenging days events. I began to notice that glimpses of scenery weren’t familiar. My brain too tired to comprehend what was going on. Then I realised I was on the 283 which takes a different route.

Picture of Colleen happily looking down on seeing eye labrador Rhian woth her hand on his shoulder

Now I didn’t know where the bus was going to stop from where I needed to get off. Asking the driver some questions, I eventually got off the bus but with quite a long trek home.

Feeling absolutely shattered both physically and mentally, of which I am sure Rhian felt the same way, we were both glad to be back home. When my husband came home and asked how my day went, my simple answer was “I don’t like catching public transport anymore.”

Moral of my story

This story of my planned exciting adventure of independence, is not to tell you that catching public transport with a vision deficit is a difficult and arduous task to do. There are plenty of blind people catching transport regularly and with ease.

My lesson here is that if I had used some patience and waited for a sighted person to go with me and familiarise my planned route with Rhian, then things would have been different.

A little forward planning goes a long way when you can’t see where you are going! One day I will endeavour to try this again but with somebody by myside to orientate me, along with Rhian being familiarised with a new route to remember.

My one consolation was that I had my bestie and closest confidant giving me comfort and a sense of security, by myside the entire day through. Thank you Rhian.

Thankyou for joining me and reading my Peacock Tale.
I look forward to being with you again very soon sharing stories and insights about my life.

Next blog I will be writing about is when I was asked a very profound and soul enquiring question. Do I feel the same person that I was before I lost my sight?

Colleen Ashby smiling through a bunch of peacock feathers

No regrets
Colleen Ashby

@seeing-eye dogs Australia
@Vision Australia

How much trouble can your ego cause? Here I share the price I paid when my ego got in the way!

A note to readers: I originally wrote this blog back in March when I thought my website would be up and running. I wanted to include it as it is still a current part of my journey. So please enjoy my Peacock Tale about my swaggering ego.

Why do we need our ego?

Colleen in front of a crowd explaining lifes opportunities.

I agree with Skyhooks song ‘Ego is not a dirty word.’ Our ego is the outer reflection of our mental and emotional state. The ego is an indicator of a person’s self-esteem or self-importance. We all need to have a healthy, balanced ego to create and maintain relationships with not only other people but also ourselves. Our ego is what drives us to do the things we do in life.

Too much ego, however, can make people seem obnoxious and annoying, while too little ego makes us not care about the world or what our place and function is in it. It’s always important to check in regularly how much it is running our lives and keep it in healthy balance.

The reason I am writing this is not to give you a lecture on our egoic state but to share with you a prime example when my own ego got in my way, creating me a tremendous amount of physical pain and setback.

Having a goal

My goal or dream is to compete in the World Transplant Games that are going to be held here in Perth in 2023, how fantastic would it be to be competing on a world stage in my own hometown? For this to happen, I needed to have a shoulder replacement. That was no big deal. If I, had it done by August 2021, then I would have eighteen months to recover and get my fitness back. Easy! With that plan in mind, I went ahead and got my new shoulder.

Doing what it takes to achieve your goal

Being told by the surgeon that there would be no weight bearing for four to six months and returning to yoga would be closer to the twelve-month mark, I agreed and told him no worries. I wanted a full and successful outcome. Religiously doing my physio stretches and gentle movements, I was confident that I was well on track. I continued my yoga each morning at home but only performing the standing and lying positions, along with walking each day. I was noticing small gains in my range of motion and was pleased with my progress.

When ego gets in your way

At a physio visit at week ten, I showed her how I could do my sun salutation and warrior poses. Yes, I was showing off and feeling proud kin to Zena Warrior woman. Glowing remarks of the vast range of motion and how I was much further along than other patients at the same stage as me was too much for my ego. I knew I was pretty fantastic and if I put my mind to something, I can make it happen and now the physio had confirmed it for me.

Yep, I am hot stuff and don’t you forget it!

Cartoon pIcture of fearless woman like Xena Warrior with a determined look on her face.

Internal conflict with the ego

Telling my family and friends of the physio’s comment, it was just too much for my ego to deal with. On Saturday morning, a few days after the physio’s glowing report, I let my ego get the better of me. Going through my yoga routine, my ego told me that I was indeed Zena warrior woman and was strong enough to perform a plank. For those who don’t know what a plank is, it is a body weight position where you hold yourself up on elbows and knees or toes while lifting your torso up. Extremely hard on the shoulders but great for strengthening your core muscles. I was only hovering for ten seconds or so when I knew I shouldn’t be doing it. Something felt wrong and immediate regret set in.
What the hell did I think I could hold a plank at week ten, when the surgeon told me about no yoga for eight to twelve months, let alone no weight bearing for four months and here I am at bloody week ten thinking I am so amazing and better than anyone else that I can magically do the impossible without any consequence!

Picture of Colleen in bathing suit in front of the pool.

To add fuel to the fire, the following week, I went down to the pool to go into the walking lanes.

The physio thought it would be great if I could get in the water and do some gentle arm movement.

Light Breast stroke arms and moving them back and forth as I walk would be beneficial.

Obeying the physio’s orders, I went in the pool.

Ego, once again got in my way. Memories of my victorious gold medal swimming days popped straight back into my head. What am I doing walking in these lanes? I thought. I’m a swimmer, I’m not doing any of this sissy stuff. So, what did my swaggering ego tell me to do? Time to bring out Zena once again! Twenty laps of power walking with strong scooping full length arms, followed by another twenty laps walking backwards with full, strong Breaststroke arms! I felt all right at the time but later on that afternoon, my arm was like a dead lump of meat, just hanging there with no strength at all and considerable pain partnering it. Yep, my ego, got the better of me once again.

The price you pay when ego gets in the way

Long story short, I go in tomorrow (31 March 2022) for another shoulder replacement. Not only did I move the joint out of position, but I also tore my supraspinatus muscle that gives the capability of lifting the arm up. I now need a reverse shoulder replacement (the ball and socket are anatomically positioned opposite to how they normally are) to remedy my ego’s work.

Keep focus on your goals

I still haven’t put the dream or goal of competing in the world games completely out of my mind. I have always been a goal setter and visualise the end result I am wanting. This time however, I will be on guard of my ego and keep Zena warrior woman in check. Slow and steady wins the race as the saying goes. I will keep you informed to how my progress toward my goal is proceeding.

Be brave and vulnerable with your goals.

We all need to allow ourselves to be vulnerable in and dare to want to achieve something bigger than ourselves. By telling others of our goals is vulnerability on the front line. If you keep a dream to yourself, you have no one to make you accountable towards making steps toward your goal. Be brave. Dare Big and discover how much energy and exuberance you feel inside. The only failure in life is when you are not doing the best to your own capability. There is no need to compare yourself to anyone else. Just know that you are always giving one hundred percent of your personal best and that is all anyone should ever expect of you.

Always believe in yourself and don’t let anyone stand in your way. It is not the achievement of your goal or dream that is important but your strive and personal growth and empowerment gained on your journey along the way.

What's a book launch like for a legally blind heart transplant survivor? Colleen Ashby writes about her exciting first book launch.

March 20th 2021 was a day that will stay in my memory for the rest of my life for sure. The fruition of completing my first book ‘I can see clearly now’ and time for the big reveal with an amazing book launch.

Always being one to do things in style and to the best of my ability, I planned it at the Harry Perkins Medical Centre at Fiona Stanley Hospital.

Image of Colleen Ashboy Book Cover - I can See Clearly Now, click to go to the full description.

I thought this to be a fitting venue as it was my Heart Transplant done here that opened my life in ways I could never have expected.

A blind mistake of venues

After a near catastrophic mistake with a misunderstanding to which hospital the Harry Perkins Centre was at, a mistake on my part that comes with not being able to see where you are, we managed with some swift and quick thinking plans to be set in motion with only two days to spare.

Photo of the lobby with lots of people before the book launch of a Blind heart transplant recipient. Colleen Ashby

Talk about the eleventh hour, now I know what it feels like as panic rises rapidly and don’t particularly want to experience it again! Luckily as the saying goes ‘I love it when a plan comes together, and it came together smoothly and quite effortlessly I must say.

Blind and overwhelmed

The sound of bustling people filling the auditorium with the heightening volume of the guest’s excited chatter filled the room. Music playing as I walked in with Rhian by my side was quite overwhelming as applause began but no sight of the guests before me.

Chris Thomas, CEO of Transplant Australia flew over from Sydney to launch my book, along with Ron Hooten, CEO of Vision Australia via a zoom link from Melbourne.

The next hour went by in a flash with three songs from my book chapter titles being sung by a live performer throughout the event. “Isn’t she lovely” by Stevie Wonder, “At last” Eta James and of course “I can see clearly now” by Johnny Nash were the selected tunes to create a beautiful vibe.

Understanding the meaning of a second chance of life

A Q and A with Claudette Pope, editor of Footprints Publishing met a lot of belly laughter and enjoyment to the answers I gave of anecdotes of things that have occurred since transplant and becoming legally blind.

Ron Hooten then said some inspiring words of my achievements over the past few years as a Vision Australia client.

Editor Claudette Pope and Colleen hugging on stage at the book launch.

A genuine feeling of love was experienced by everyone in the auditorium as other transplant recipients, friends and family all understood what the immense impact of a second chance of life meant.

How many extra years of gifted life were in the room?

Photo Chris Thomas going around the room adding up how many extra years of gifted life were there. - Colleen Ashby

Chris Thomas went around the room asking how many years post-transplant, recipients were.

Then accumulated the years together. An extra one hundred and two years of life had been gifted in the room.

It is a humbling exercise to be part of, knowing that none of these people would be here, if not for the donor and their family donating the gift of life supported by Donate Life.

Challenges of a heart transplant

The Words from Dr Amit Shar, senior cardiology consultant and Clare Fazackerley, clinical nurse practitioner, had people inspired and in tears at the same time, as the magnitude of challenges met along my journey was revealed.

Very few people ever knew about the depth or seriousness of my heart situation. The general feedback from people was that one minute they were crying, then the next filled with laughter. What a perfect blend of emotions.

Finding your life passion

Colleen interacting with the audience knowing she was in her heartfelt joy of inspiring people. Colleen Ashby

Up there on stage, I was in my element. Engaging with the audience, entertaining them with anecdotes of humorous encounters I have had along the way with no sight.

I knew that was always my joy and passion, inspiring people and having a laugh with them at the same time. I was beaming inside and loved it!

Can a blind person sign books?

Time to sign some books.

Sitting down at the table the buzz and crowd hovering around me was incredibly hard to take in, especially as I have only a fraction of sight and can’t see anything in front or to the left of me at all.

You may be wondering how I sign books. Once I put my pen on the page by feeling, I simply write.

Colleens Ashby signing the Book I Can See Clearly Now

The only fall back is that I have to have quiet and no interruption during this process. As I sound out the letters in my head as I write them, everything is great.

If I am interrupted however, I lose where I am up to and can’t read what I have already written, nor can I work out where to place my pen again. I can though quite successfully write messages in books for people.

Fame as a blind heart transplant survivor

Feeling like a famous movie star as people not only waited in line to have a signature but simply to say hello and some also wanted photos taken with me.

Now I understand how fame can be intoxicating and give you a high that takes days to come down from! I was on cloud nine for at least three days after and had a buzz in me that couldn’t be dulled.

The feeling I experienced that day of knowing this was my true passion and living in my heart space of boundless energy is a memory I often use to recall joy and love when meditating.

I felt vibrant and alive and knew then I was definitely on my souls true path. What an amazing gift I was given from not only my new heart but losing my sight as well.

Picture of Colleens Book I Can See Clearly Now
Colleen laughing as part of the audience at the book launch.
Colleen with friends at Book Launch I can see clearly now

In my very first blog I explain why its a gift to be a heart transplant survivor, and where my journey has taken me so far.

I feel the best way of engaging in any new story or relationship is to start at the very beginning. Since I am wanting to create a relationship with you my fellow travellers of life and will do so through telling my stories or tales to you, then this is indeed the appropriate place to start.

The reason I call it the birth of a new journey is for me extremely appropriate I feel. They say that the very first sign of a new life is the heartbeat. From this divine heart space, the formation of life begins.

How my heart transplant journey began

Not only was my old heart taken out of my body but the new life-giving pump I received to replace it, would not begin to work. It sat silent and still in my body for more than two days.

Miraculously my new heart decided to birth me into my second chance of life, much to the relief of my loved ones waiting anxiously by my bedside during these intense times. when I eventually woke from my close encounter with death, I too was incredibly grateful for all the team had done to keep me alive.

Colleen‘s heart transplant badge 174. Hart transplant recipients in Western Australia received a badge of the number Transplant they were since Perth began doing them.

The gift of my journey

For many transplant recipients, the gift of life is a life affirming experience as you are given a second chance of living. Gratitude is not enough to express what not only the recipient but their families, friends and loved ones feel. The opportunity to have more time to spend together.

A chance to continue doing the things they love to do and create wonderful memories for years to come. Even with this amazing gift however life usually continues on its old familiar way. For me though this was not to be.

Through the topsy turvy events that occurred over the four-day roller coaster ride hovering between life and death of my heart transplant, I woke up legally blind. Life certainly went on for me but in a new and unfamiliar way as I navigated my new norm as part of the blind community. With determination and a verve for this new life I was gifted with, so many new experiences flooded my way.

Can you swim as a blind heart transplant survivor?

Finding swimming as a new passion after twenty years, the challenge of competing in the Australian Transplant Games and going on a television show were just a few of the wonderful new opportunities that came my way.

Oh, and I mustn’t forget one of my main catalysts for keeping me mentally in good stead, my introduction to yoga. While fantastic for calming and centring the mind and body, a few good laughs during the dog were had. Laughing is also essential for good health!

If I hadn’t had lost my sight, my life would have just returned to the way things were before, of which, I am sure. I do feel I was given an extra special gift and that was to engage on a brand-new journey in life.

Can you write a book as a blind heart transplant survivor?

There is no way I would have written two books, created my own website and decided to blog and share my stories with people if I still had my sight and continued along the same old hum drum way of living. I could never have imagined my life travelling down this path I am on now, nor would I have spiritually and personally grown the way I have over these past five years.

If it were not for the precious gift of the donor and their family, I wouldn’t be here today. My sons wouldn’t have a mother, my husband his wife and my mother her only daughter.

Thanks to the selfless gift of the donors and their families, thousands of people have the chance to spend more time with their loved ones and share in the magic of life again and the donor lives on in so many people.

Please help Transplant Australia

You can help save up to eight lives by simply taking one minute to register to become an organ donor. The opportunity to give the most precious gift you could ever offer.

Please click on the link below to register and become a life saver or share the message with as many people as you can to help donate and save lives.

To register to be an organ and tissue donor, please go to https://donatelife.gov.au/register-donor-today

Or visit the https://transplant.org.au/ website for more information.

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